| Myeloma Chat > MM patient on remission/maintenance (1 reply - 28 views)
Hi,
The key thing is to know why you have kidney problems. Is it related to the myeloma or to another problem? This can only be ... Fri Nov 20th, 2009 10:37 pm Myeloma Chat > Father has MM and MDS (3 replies - 73 views)
I think the best way to find out more about reduced intensity allotransplants is to talk to a doctor, especially one with experience with myeloma ... Wed Nov 18th, 2009 10:10 pm Myeloma Chat > Grandpa (1 reply - 34 views)
Hi,
One of our myeloma specialists would be glad to see your grandfather and offer a treatment opinion. We see any patient with myeloma, so he ... Tue Nov 17th, 2009 05:40 pm Myeloma Chat > Father has MM and MDS (3 replies - 73 views)
Hi,
In our opinion, a patient like your father would benefit most from a reduced intensity allotransplant that would take care of both the myeloma and ... Mon Nov 16th, 2009 10:38 pm Myeloma Chat > MM and MDS (7 replies - 168 views)
Hi,
There are treatments for MDS, depending on the stage of the MDS. None of those are curative except for an allogeneic transplant (using somebody else's ... Mon Nov 16th, 2009 04:09 pm Myeloma Chat > confuse (2 replies - 58 views)
Hi,
The thing to note about chromosome 13 is that it can indeed have a bad prognosis if detected by regular chromosome analysis (metaphase analysis) but ... Mon Nov 16th, 2009 04:04 pm Myeloma Chat > MM and MDS (7 replies - 168 views)
Hi,
Sorry it took me a few days to reply. I am currently out of the country, so it took me some time to get to ... Wed Nov 11th, 2009 08:47 pm Myeloma Chat > Is Myeloma Hereditary? (0 replies - 38 views)
We recently interviewed Nicola Camp, PhD, about her studies on multiple myeloma in families. Read her comments are learn how to participate in the studies ... Fri Nov 6th, 2009 11:59 pm Myeloma Chat > H1N1 (3 replies - 77 views)
Hi Doug,
According to Dr. Tricot, the Director of the Huntsman Cancer Institute Myeloma Clinic, there is no general agreement on this among physicians.
He personally recommends ... Fri Nov 6th, 2009 10:01 pm Myeloma Chat > MM and MDS (7 replies - 168 views)
Yes, sounds like there's lots to think about.
Your dad's blood type is not a factor when it comes to assessing the difficulty of finding a ... Wed Nov 4th, 2009 10:58 pm Myeloma Chat > patient question (1 reply - 73 views)
Hi Pamela,
From our perspective, we would recommend that you see a myeloma specialist just to confirm that you don't need any treatment at this time. To make this ... Wed Nov 4th, 2009 07:21 pm Myeloma Chat > MM and MDS (7 replies - 168 views)
Hi,
How did things go with the specialist today?
The first thing that needs to be settled is whether he really has both MDS and myeloma. If ... Tue Nov 3rd, 2009 01:10 am Myeloma Chat > confused asymptomatic myeloma patient with osteopenia (3 replies - 121 views)
Hi Pamela,
In our opinion, a DEXA scan can give you the answers you are looking for and is the best way to evaluate your osteopenia. ... Thu Oct 29th, 2009 01:09 am Myeloma Chat > MGUS numbers (3 replies - 68 views)
Hi,
If you have carpel tunnel syndrome and MGUS, there is a possibility that you have primary amyloidosis. If this is the case, it most likely ... Wed Oct 28th, 2009 09:16 pm Online Support Group > Disclaimer (0 replies - 68 views)
DISCLAIMER: Please note that this message board is for informational purposes only and is not a substitute for the professional medical advice given during a ... Wed Oct 28th, 2009 08:48 pm Myeloma Chat > DISCLAIMER (0 replies - 18 views)
DISCLAIMER: Please note that while our myeloma experts at Huntsman Cancer Institute are happy to answer your general questions, they can not provide specific, personalized ... Wed Oct 28th, 2009 08:18 pm Myeloma Chat > Severe bone pain but allegedly just at MGUS stage (9 replies - 148 views)
Hi,
The purpose of this message board is to provide general insight about myeloma to patients and/or family members based on the knowledge and opinions of ... Wed Oct 28th, 2009 02:20 am Myeloma Chat > Help (3 replies - 86 views)
Hi Terry,
I am so sorry to hear about your husband. It would be against the law for us to recommend any type of treatment for ... Wed Oct 28th, 2009 12:52 am Myeloma Chat > confused asymptomatic myeloma patient with osteopenia (3 replies - 121 views)
Hi Pamela,
The director of the Huntsman Cancer Institute Myeloma Program has this response to your question:
"If you have osteopenia due to menopause, the dexa scan will ... Tue Oct 27th, 2009 10:00 pm Myeloma Chat > MGUS numbers (3 replies - 68 views)
By definition, MGUS is a stable disease with small variations, so there should be very little increase in IgG.
We need more than two values, though, ... Tue Oct 27th, 2009 01:52 am Myeloma Chat > Severe bone pain but allegedly just at MGUS stage (9 replies - 148 views)
In our opinion, bone scans are not very informative if you're looking for myeloma. They are not very sensitive for lesions, which is why we ... Tue Oct 27th, 2009 01:40 am Myeloma Chat > Severe bone pain but allegedly just at MGUS stage (9 replies - 148 views)
Hi,
You’re certainly asking the right questions. All your bone pain and the fact that you felt a pop in your back the other day would, ... Mon Oct 26th, 2009 09:49 pm Myeloma Chat > MM with very low platelets (5 replies - 124 views)
Best of luck to you, and keep us all updated on how you are doing! ... Thu Oct 22nd, 2009 09:31 pm Myeloma Chat > MM with very low platelets (5 replies - 124 views)
Hi Caroline,
In general, there would not seem to be an advantage to you waiting. It seems like what the Cleveland doctors are saying makes sense ... Wed Oct 21st, 2009 10:10 pm Myeloma Chat > My husband died last night (3 replies - 113 views)
Dear Elizabeth,
We are deeply sorry to hear about Joe’s death. You are in our thoughts today, and we want to express our sympathy. We hope that ... Wed Oct 21st, 2009 08:26 pm Myeloma Chat > MM with very low platelets (5 replies - 124 views)
Hi Caroline,
We think that the first thing you need to know is if your bone marrow is simply not making any platelets or if your ... Mon Oct 19th, 2009 11:32 pm Myeloma Chat > nausea/stomach pain (1 reply - 61 views)
Hi,
We would recommend that your husband have an upper endoscopy to see if there is anything abnormal, such as an ulcer, gastritis, or amyloidosis. If ... Mon Oct 19th, 2009 10:26 pm Myeloma Chat > How long did it take everyone to get a diagnose? (5 replies - 119 views)
Hi P,
So sorry to hear about your bone pain. On the bright side, if you get good and effective treatment, it should take care of these side ... Mon Oct 19th, 2009 06:18 pm Myeloma Chat > Recently diagnosed 40% malignant cells - Help...need to know if treatment is the best.. (5 replies - 300 views)
Hi Wendi,
I definitely think your mother could benefit from seeing a myeloma specialist, especially if her current treatment does not seem to be working. That ... Mon Oct 19th, 2009 04:26 pm Myeloma Chat > How long did it take everyone to get a diagnose? (5 replies - 119 views)
Hi,
Seeing a doctor who specializes in myeloma and has seen thousands of cases will be key to getting an accurate diagnosis. We recommend you have ... Wed Oct 14th, 2009 06:32 pm Myeloma Chat > need help for relapsed cousin (5 replies - 107 views)
Hi caringcousin,
It is illegal for any doctor to give treatment recommendations without first seeing a patient in person, so unfortunately simply having her medical records ... Mon Oct 12th, 2009 10:15 pm Myeloma Chat > When do they start treatment (2 replies - 59 views)
Hi Sharon,
In our opinion, if you’re having symptoms of myeloma like backpain, there would not be an advantage to waiting to start treatment. Other symptoms ... Fri Oct 9th, 2009 09:52 pm Myeloma Chat > double vs single auto stem cell transplants (10 replies - 429 views)
Hi,
I've responded to your need help for relapsed cousin post. Please let us know if you need anything else.
Chat Moderator
Huntsman Cancer Institute
... Fri Oct 9th, 2009 08:45 pm Myeloma Chat > need help for relapsed cousin (5 replies - 107 views)
Hi,
In our opinion, it’s very likely that your cousin relapsed because she did not receive maintenance therapy after the transplants. Myeloma cells are not easily ... Fri Oct 9th, 2009 08:42 pm Myeloma Chat > MGUS-What is it REALLY? (3 replies - 91 views)
Hi,
Here's a follow-up response from Dr. Tricot:
"It appears that you have indeed MGUS and not myeloma. If you have been stable for 18 months, that ... Mon Oct 5th, 2009 04:44 pm Online Support Group > MGUS confusion (2 replies - 105 views)
Hi,
Here is a reply from Dr. Guido Tricot, the Director of the Myeloma Program at Huntsman Cancer Institute:
"MGUS is an early form of myeloma that ... Fri Oct 2nd, 2009 08:13 pm Myeloma Chat > MGUS-What is it REALLY? (3 replies - 91 views)
Hi,
Here is a reply from Dr. Guido Tricot, the Director of the Myeloma Program at Huntsman Cancer Institute:
"MGUS is an early form of myeloma that ... Fri Oct 2nd, 2009 08:12 pm Myeloma Chat > Utah Cancer Survivorship Day (0 replies - 56 views)
We encourage all myeloma patients in the Utah area to join the Utah Cancer Action Network for Utah Cancer Survivorship Day 2009. It's an opportunity ... Mon Sep 21st, 2009 08:11 pm Myeloma Chat > Just Diagnosed (4 replies - 183 views)
I think it all depends on whether or not your doctor believes in more aggressive treatment like tandem transplants and whether or not this is ... Mon Sep 21st, 2009 07:58 pm Myeloma Chat > Is it too late for a Transplant? (3 replies - 197 views)
Hi Liz,
I am sorry to hear about your husband's deteriorating health. As I said before, we would recommend a transplant for his treatment if he ... Mon Sep 21st, 2009 07:35 pm Myeloma Chat > Just Diagnosed (4 replies - 183 views)
Hi Sharon,
You are indeed younger than the typical myeloma patient and, especially since you are so young, we'd recommend taking a more aggressive approach to ... Fri Sep 18th, 2009 08:41 pm Myeloma Chat > Need Some Input (3 replies - 137 views)
Hi Carl,
It's great to hear that you've had such a good response treatment!
The Myeloma Program at Huntsman Cancer Institute believes two transplants are better ... Fri Sep 18th, 2009 12:46 am Myeloma Chat > pain (1 reply - 78 views)
Hi,
Weather changes can have an impact on damaged joints. Here is an article from Science Daily about this topic:
http://www.sciencedaily.com/releases/2008/05/080530174619.htm
Hope this helps!
Take care,
Chat Moderator
Myeloma Program at ... Thu Sep 17th, 2009 07:43 pm Myeloma Chat > Multiple Myeloma (7 replies - 328 views)
Hi Ann,
You are very welcome. Let us know what else we can do for you. You can post questions here in the chat, or send ... Fri Aug 28th, 2009 07:53 pm Myeloma Chat > Multiple Myeloma (1 reply - 103 views)
Hi Granny68,
In our opinion, having radiation treatment alone is not enough. You also need systemic treatment (treatment that reaches the cancer cells throughout the body ... Wed Aug 19th, 2009 09:41 pm Myeloma Chat > Confused (1 reply - 113 views)
Hi Freddy,
We would suggest that if you are a candidate for a stem cell transplant, you go that route because treatment involving a transplant is ... Fri Aug 14th, 2009 07:32 pm Myeloma Chat > Have we overlooked something? (1 reply - 162 views)
Hi,
It is difficult to give advice without knowing the whole story and without seeing your mother and carefully reviewing her medical history. However, we'd encourage ... Wed Aug 5th, 2009 06:40 pm Myeloma Chat > New to the maze of myleoma (5 replies - 192 views)
Hi Carol,
2-3 months would very likely be just fine unless the doctors find something that would require him to begin treatment immediately.
Your husband can ... Wed Aug 5th, 2009 06:16 pm Myeloma Chat > New to the maze of myleoma (5 replies - 192 views)
Hi again,
I forgot to answer your question about housing. Our patients stay in a hotel or extended-stay facility. There are some places in the area ... Mon Aug 3rd, 2009 05:05 pm Myeloma Chat > New to the maze of myleoma (5 replies - 192 views)
Hi Carol,
The whole transplant process does take a few months, but it does not involve a continuous stay in Salt Lake City. First, we would ... Mon Aug 3rd, 2009 04:59 pm Myeloma Chat > Preparing for stem cell transplant (2 replies - 110 views)
Hi Granna,
In our experience, the chemotherapy given before the stem cell collection is usually well tolerated. However, the neupogen may cause bone pains. Ibuprofen at ... Mon Aug 3rd, 2009 03:18 pm Myeloma Chat > Marlene Wheatley has gone Home (3 replies - 117 views)
Dear Mark, Melissa and Matthew,
We are so sorry to hear of your loss and offer our condolences in your time of sorrow. It sounds like ... Mon Jul 27th, 2009 08:41 pm Online Support Group > brother was just diagnosed (20 replies - 760 views)
Hi everyone,
It’s great to see a variety of opinions and the reasons behind them. Let me first clarify my comment about the 6 months. This ... Tue Jul 21st, 2009 12:56 am Online Support Group > brother was just diagnosed (20 replies - 760 views)
Hi Phyllis,
I am sorry to hear about your brother. I can imagine that this is a confusing time for you!
It is important to seek ... Fri Jul 17th, 2009 09:54 pm Myeloma Chat > Freelite question (3 replies - 177 views)
We're happy to help in any way we can. Our new patient coordinator, Jessica Drury, is available to schedule consults (or just answer any general ... Fri Jul 17th, 2009 07:05 pm Myeloma Chat > Freelite question (3 replies - 177 views)
Hi Steve,
Dr. Tricot, the Director of Huntsman Cancer Institute's Myeloma Program, has this response:
"The serum free light kappa and the ratio are abnormal but not ... Thu Jul 16th, 2009 01:12 am Myeloma Chat > back on valcade (1 reply - 116 views)
Dr. Guido Tricot, the Director of the Myeloma Program at Huntsman Cancer Institute, has this reply:
If you are in total remission, it would be ... Sat Jul 11th, 2009 12:07 am Myeloma Chat > Myeloma 101 (18 replies - 1480 views)
Dr. Guido Tricot, the Director of the Myeloma Program at Huntsman Cancer Institute, has this reply:
Thalidomide very seldom causes fever. Transfusions or infections are more ... Sat Jul 11th, 2009 12:04 am Myeloma Chat > Lyrica (12 replies - 401 views)
Actually, with this history, it would not be wise of us to give advice on how to handle his current condition without seeing him in ... Fri Jul 10th, 2009 04:03 pm Online Support Group > MM (3 replies - 137 views)
Hi Danny,
The more cycles of revlimid you take, the more difficult it will be to collect a good number of stem cells for transplant. ... Fri Jul 10th, 2009 03:52 pm Myeloma Chat > velcade remmision (1 reply - 126 views)
Hi,
The median time to myeloma progression for newly diagnosed multiple myeloma patients on this treatment is 15 months. Of course, things vary from patient to ... Mon Jul 6th, 2009 04:47 pm Myeloma Chat > Lyrica (12 replies - 401 views)
Hi liz,
Could you tell us more about the treatment your husband has had for his myeloma? Has he had treatment with thalidomide or velcade? If you could ... Wed Jul 1st, 2009 08:51 pm Myeloma Chat > Is it too late for a Transplant? (3 replies - 197 views)
Hi Liz,
Transplants can be very effective in achieving long periods of remission and since your husband has not achieved the desired results with the current ... Wed Jul 1st, 2009 07:06 pm Myeloma Chat > Eight treatments and it just keeps coming back (6 replies - 206 views)
Hi,
The director of the Huntsman Cancer Institute Myeloma Program, Dr. Guido Tricot, wanted me to pass on the following message. This is his opinion and ... Mon Jun 29th, 2009 08:25 pm Online Support Group > moving with cancer (1 reply - 129 views)
Hi Melissa,
Our doctors are not aware of any myeloma clinics in Hawaii, so unfortunately we can't give you any guidance on that. Wish we could be ... Sat Jun 27th, 2009 12:12 am Myeloma Chat > Second transplant may not be an option??? (6 replies - 245 views)
Hi Corvette,
I wish I could answer this for you even in general terms, but whether or not you would qualify really depends on a number of ... Wed Jun 24th, 2009 10:13 pm Myeloma Chat > Post Transplant Eating? (1 reply - 96 views)
Hi jazzmom,
The director of the myeloma clinic at Huntsman Cancer Institute, Dr. Guido Tricot, has this response for you:
"It is difficult to answer those questions ... Wed Jun 24th, 2009 05:59 pm Myeloma Chat > Second transplant may not be an option??? (6 replies - 245 views)
Hi Corvette,
On behalf of Huntsman Cancer Institute's Myeloma Program, I'll say that we believe treating multiple myeloma aggressively on the front end is the key ... Fri Jun 19th, 2009 06:57 pm Myeloma Chat > double vs single auto stem cell transplants (10 replies - 429 views)
I second that! Congrats to you and your husband for making it this far through the treatment and achieving remission! Great news!
Another update on the ... Fri Jun 19th, 2009 06:36 pm Myeloma Chat > double vs single auto stem cell transplants (10 replies - 429 views)
Here's an update on the status of this study. Some data cited within the paper to make the main argument against tandem transplants turned out ... Wed Jun 17th, 2009 09:07 pm Online Support Group > I need Information (2 replies - 202 views)
Hi,
At Huntsman Cancer Institute, we believe a diagnosis of myeloma should not be made based on blood work alone. The critical tests that will lead ... Wed Jun 3rd, 2009 07:58 pm Myeloma Chat > Recently diagnosed 40% malignant cells - Help...need to know if treatment is the best.. (5 replies - 300 views)
Hi Eren,
dpcaregiver and DougC already did an excellent job in covering this, and the main message I would emphasize is that a lot of the ... Sat May 30th, 2009 06:21 pm Myeloma Chat > Leviquin? (3 replies - 195 views)
Hi Dizzy1,
Dr. Tricot, the director of the Huntsman Cancer Institute Myeloma Program, says:
Tendon ruptures can happen with levaquin but are very uncommon. It ... Fri May 22nd, 2009 06:10 pm Myeloma Chat > Typhilitis (2 replies - 143 views)
Also, Dr. Tricot says you're more than welcome to e-mail him directly if you have more questions.
... Wed May 20th, 2009 10:33 pm Myeloma Chat > Typhilitis (2 replies - 143 views)
Hi dpcaregiver,
So sorry to hear this! Typhlitis is a pretty severe complication and often results in an infection of the blood and low blood pressure. ... Wed May 20th, 2009 10:25 pm Myeloma Chat > Lyrica (12 replies - 401 views)
Hi Doug,
The director of the HCI Myeloma Program says that, in his experience, lyrica only helps with painful neuropathy and not with numbness and ... Wed May 20th, 2009 05:58 pm Myeloma Chat > Lost of Height in MM (2 replies - 109 views)
Your husband may want to consider interventions like a procedure known as kyphoplasty. Kyphoplasty treats spinal fractures and helps restore the height of compressed vertebra, so it ... Mon May 4th, 2009 08:50 pm Myeloma Chat > Is a second auto BMT feasible 8 years after the first one? (3 replies - 173 views)
Hi,
Thanks for the info. With such a good platelet count, it would appear that stem cell collection would very likely be possible for you.
I ... Fri May 1st, 2009 10:16 pm Myeloma Chat > Is a second auto BMT feasible 8 years after the first one? (3 replies - 173 views)
Hi,
If we know your platelet count at this time, we can give you a better idea of whether or not you will be able to ... Wed Apr 29th, 2009 08:52 pm Myeloma Chat > confused somewhat (6 replies - 263 views)
Hi Destiny,
It's important to remember that while you may not feel up to chemo or a stem cell transplant, getting treatment is key to getting ... Mon Apr 27th, 2009 07:02 pm Myeloma Chat > Videos Now Online: An Update on Multiple Myeloma (0 replies - 107 views)
Hi everyone,
For anyone who missed our educational seminar on April 4, 2009, you can now view videos from the event online.
The videos include Dr. ... Wed Apr 22nd, 2009 07:29 pm Myeloma Chat > Upcoming Event: Meet the Experts - An Update on Multiple Myeloma and Amyloidosis (0 replies - 150 views)
Hi everyone,
We hope you'll come out to Huntsman Cancer Institute on Saturday, April 4, for an educational seminar on multiple myeloma sponsored by The Leukemia & Lymphoma ... Mon Mar 30th, 2009 08:29 pm Online Support Group > My Daddy..... (6 replies - 453 views)
Hi Kitty,
No matter what, your father will certainly be accepted into the Huntsman Cancer Institute Myeloma Program. And our patient coordinators will do everything they can ... Mon Mar 30th, 2009 06:39 pm Myeloma Chat > not treatable? (5 replies - 240 views)
Hi,
While it is not possible for our doctors to give medical advice without first examining a patient in our clinic and having access to all ... Mon Mar 30th, 2009 06:18 pm Myeloma Chat > about stages (6 replies - 268 views)
Hi Cristy,
Looks like you've had quite a few helpful responses, and let me be the fourth to say that there certainly are effective treatments available ... Mon Mar 30th, 2009 05:58 pm Myeloma Chat > poss new diagnosis (2 replies - 181 views)
Hi JMB,
I’m sorry to hear about your mother.
I would say that no matter where you go, ask your doctor key questions about the treatment he ... Mon Mar 23rd, 2009 04:04 pm Myeloma Chat > Post transplant question (2 replies - 173 views)
Hi,
Here is a reply from Dr. Guido Tricot, the Director of the Huntsman Cancer Institute Myeloma Program:
It is not important at what point in time ... Thu Mar 19th, 2009 12:47 am Myeloma Chat > Six weeks after Transplant (5 replies - 227 views)
Hi Jazzmom,
The Huntsman Cancer Institute Myeloma Program has a podcast on eating after transplant. Our registered dietician gives advice to those experiencing a loss of ... Wed Mar 4th, 2009 08:04 pm Myeloma Chat > Join Our Online Support Group! (0 replies - 85 views)
Hi everyone,
Now you can connect directly with the licensed clinical social workers at Huntsman Cancer Institute in our online support group! This is another online ... Wed Mar 4th, 2009 07:23 pm Myeloma Chat > mylenoma vs myeloma (2 replies - 167 views)
Hi gg,
Mylenoma is not a word, but there is melanoma. It gets confusing because the words melanoma and myeloma are so very similar. Melanoma is ... Wed Mar 4th, 2009 06:43 pm Online Support Group > Upcoming Event: International Myeloma Foundation Support Group Meeting (0 replies - 117 views)
Hi everyone,
There will be an International Myeloma Foundation support group meeting at Huntsman Cancer Institute in Salt Lake City on Saturday, March 7, 2009.
We hope ... Fri Feb 27th, 2009 09:21 pm Myeloma Chat > Upcoming Event: International Myeloma Foundation Support Group Meeting (0 replies - 94 views)
Hi everyone,
There will be an International Myeloma Foundation support group meeting at Huntsman Cancer Institute in Salt Lake City on Saturday, March 7, 2009.
We hope ... Fri Feb 27th, 2009 09:18 pm Myeloma Chat > Doing it without a transplant (7 replies - 311 views)
Hi Lois,
This is a good question. It is certainly possible to achieve remission without a transplant, and it is good to hear that you are ... Thu Feb 26th, 2009 03:40 pm Myeloma Chat > wondering if its too late for treatment for my mon (4 replies - 211 views)
Hi,
Just as Annick said, hypercalcemia is usually treated with intravenous fluid and medications, such as biophosphonates or other drugs, to stop the breakdown of bone. ... Mon Feb 23rd, 2009 06:57 pm Myeloma Chat > A very practical question (10 replies - 419 views)
Hi Lois,
We usually give our patients 100 mg of Colace three times a day and Senna twice a day to help with constipation. These are ... Mon Feb 23rd, 2009 06:50 pm Myeloma Chat > wondering if its too late for treatment for my mon (4 replies - 211 views)
Hi,
I spoke with Dr. Guido Tricot, the director of the Huntsman Cancer Institute Myeloma Program, and he says that the first thing to check would be ... Sun Feb 22nd, 2009 09:12 pm Myeloma Chat > Myeloma in the brain (1 reply - 200 views)
Hi,
I am so sorry to hear about your friend. Myeloma invading the brain is very serious. Treatment is certainly a challenge in these cases.
Sincerely,
Chat Moderator for ... Mon Feb 16th, 2009 09:58 pm Myeloma Chat > Brief history and recent findings ???? CONFUSED (4 replies - 239 views)
Hi Jane,
After reading your comments, the director of the Huntsman Cancer Institute Myeloma Program, Dr. Guido Tricot, says the following:
In MGUS and smoldering myeloma, there are ... Mon Feb 16th, 2009 09:40 pm Myeloma Chat > Brief history and recent findings ???? CONFUSED (4 replies - 239 views)
Hi,
The results of your MRI and the high level of free kappa in your serum would seem to indicate that this is no longer smoldering ... Sun Feb 15th, 2009 11:12 pm Online Support Group > Want e-mail updates when there's a new posting? (0 replies - 163 views)
As a member of the Online Support Group, you have the option of receiving an e-mail to inform you that someone has posted a new ... Fri Feb 13th, 2009 05:27 pm Online Support Group > How to post a comment or question (0 replies - 137 views)
:) Welcome to the Online Support Group! :)
REGISTER TO BEGIN POSTING COMMENTS
You will need to register and create your own username and password if you would like ... Fri Feb 13th, 2009 05:17 pm Myeloma Chat > Clinical Remission and/vs Tumor/Lesion Growth (Question) (4 replies - 226 views)
Hi Doug,
I passed your question on to Dr. Tricot, and here is his answer. I hope this answers your question, but let us know if ... Wed Feb 4th, 2009 10:24 pm Myeloma Chat > Hole in the Bowel (1 reply - 190 views)
Hi dpcaregiver,
I asked Dr. Tricot about this and he says that a perforation can indeed be caused by chemotherapy, especially dexamethasone. He says this typically ... Wed Feb 4th, 2009 10:16 pm Myeloma Chat > double vs single auto stem cell transplants (10 replies - 429 views)
Hi Carole,
Yes, we are indeed aware of this study and were rather surprised to see it. We wondered immediately what data the study could be ... Wed Jan 28th, 2009 11:04 pm Myeloma Chat > Revlimid Maintenance (3 replies - 332 views)
Hi dot,
I work for Huntsman Cancer Institute's Myeloma Program. If you were our patient, we would start you on a combination of revlimid and dexamethasone ... Thu Jan 15th, 2009 05:01 pm Myeloma Chat > Remission (6 replies - 374 views)
Hi Diana,
I work for the Myeloma Program at Huntsman Cancer Institute and have consulted with some of our staff to get answers to your questions.
We ... Mon Jan 12th, 2009 11:05 pm Myeloma Chat > Jackie (2 replies - 263 views)
Hi Jackie,
I work for the Myeloma Program at Huntsman Cancer Institute and asked our director, Dr. Tricot, about your question. He says he just generally ... Mon Jan 12th, 2009 10:16 pm Myeloma Chat > Your advice & knowledge please (4 replies - 273 views)
Hi,
I consulted with Dr. Tricot, the Director of the Huntsman Cancer Institute Myeloma Program, about your question and here is what he says:
There ... Tue Jan 6th, 2009 10:05 pm Myeloma Chat > Myeloma residual effects but no myeloma (10 replies - 616 views)
Hi again,
Dr. Tricot indicated that it is possible to have a negative bone marrow and still have myeloma. This is not uncommon. It is also ... Sat Nov 22nd, 2008 01:10 am Myeloma Chat > Myeloma residual effects but no myeloma (10 replies - 616 views)
When I see Dr. Tricot today I will present all of the latest facts you have given and then let you know what he says. ... Fri Nov 21st, 2008 11:50 pm Myeloma Chat > Myeloma residual effects but no myeloma (10 replies - 616 views)
My worry is that it is cancer, though. If he was diagnosed with multiple myeloma, that doesn't just disappear without treatment. And if three radiologists told ... Fri Nov 21st, 2008 11:10 pm Myeloma Chat > Myeloma residual effects but no myeloma (10 replies - 616 views)
I think the best thing to do for your husband at this point is to get him to a doctor who specializes in myeloma so ... Wed Nov 19th, 2008 06:40 pm Myeloma Chat > Myeloma residual effects but no myeloma (10 replies - 616 views)
I talked to Dr. Tricot, who says that an MRI in myeloma patients typically shows multiple areas of cancer throughout the whole bone marrow. He ... Tue Nov 18th, 2008 03:02 am Myeloma Chat > Myeloma residual effects but no myeloma (10 replies - 616 views)
Hi,
I asked Dr. Guido Tricot, the director of Huntsman Cancer Institute's Myeloma Program, about your posting and he said that, in the more than 10,000 ... Mon Nov 17th, 2008 09:34 pm Myeloma Chat > Diagnosed with MGUS 10 months ago on (02/08) (1 reply - 279 views)
Hi SusieQ,
I spoke with Dr. Guido Tricot, the director of Huntsman Cancer Institute's Myeloma Program, about your posting and he says it is important for ... Mon Nov 17th, 2008 07:19 pm Myeloma Chat > What to Bring from Home (2 replies - 377 views)
Hi everyone,
We've had several patients and caregivers who are preparing to travel and go through an outpatient autologous stem cell transplant away from home ask us what they ... Mon Jul 21st, 2008 08:55 pm Myeloma Chat > WANT E-MAIL UPDATES WHEN THERE'S A NEW POSTING? (0 replies - 1068 views)
As a member of the Myeloma Chat, you have the option of receiving an e-mail to inform you that someone has posted a new comment ... Wed Jan 23rd, 2008 07:19 pm Myeloma Chat > SECOND TIME AROUND (1 reply - 851 views)
Hi Diane,
The staff of the Myeloma Program at Huntsman Cancer Institute is happy to offer you any support we can to help you cope with ... Wed Dec 5th, 2007 07:05 pm Myeloma Chat > INSTRUCTIONS FOR USING THIS CHAT (0 replies - 671 views)
:) Welcome to the Myeloma Chat! :)
REGISTER TO BEGIN POSTING COMMENTS
You will need to register and create your own username and password if you would like to ... Sun Oct 21st, 2007 02:33 am | 