Hi, I'm new to the group and have a question. My husband was dx 8/08 at stage 3. His MM was discovered during a routine exam. He has been treated agressively with Thalimide/Velcade in preparation for a stem-cell transplant which takes place next week. He has already given his stem-cells. He has developed Peripheral Neuropathy and has extreme pain, burning and tingling of the hands and feet and his feet are the worst. He has taken three different medicides starting with Gapapentin, Amitriptylin & Lyrica. The medicine makes it worse. His doctors are stumped as they have not seen anyone react as he has. He is going to see a Neurologist on Monday before he goes to Duke on Wednesday. Has anyone else experienced this and found relief? Thanks! Penny
I've had one heck of a time with pain/numbness in my feet and tingling in my hands due to Revlimid and/or Velcade; however, I've never taken anything for it. I find that walking a couple miles each day helps, though not as much as I'd like. Despite the pain in the balls of my feet, the worst side-effect I've experienced is cramping in my feet and legs. Believe it or not, a bar of soap help between my feet at night in bed has helped a little with the cramping. Bottom line though, my feet are really haing a tough time with Revlimid and/or Velcade....not real sure which drug is responsible.
