| Author | Post |
|---|
sunshine
Member
| Joined: | Thu Jul 10th, 2008 |
| Location: | Denver Co. |
| Posts: | 5 |
| Status: |
Offline
|
|
Posted: Thu Jul 10th, 2008 06:49 am |
|
| Am in my 7th Yr. and tired of hospitals and drugs and have my Doctor very upset about throwing away all my pills and just living out my life and living on "Gods plan" and doing all the Good while am here and just enjoying my life and getting up each morning and saying "Thank You" am still here after 2 stem cell treatment and the velcade and other drugs i have nerve damage mostly in my feet that will be will me always and other side effects..living in Denver would like to move to Atlanta area anyone know of Treatment specialist please contact me...Thank YOu....One day at a time...Sunshine
|
drcla
Member
| Joined: | Sat Jul 12th, 2008 |
| Location: | |
| Posts: | 5 |
| Status: |
Offline
|
|
Posted: Sat Jul 12th, 2008 10:48 pm |
|
Please go out immediately and purchase the book, "Beating cancer with nutrition".
Patrick Quillan is the author. I keep giving the book away and repurchasing it. Besides the book being a must have, in the back of the book are names of many alternative doctors, their numbers and state they are in. Barnes and Nobles or Borders.
Sincerely
drcla
|
sunshine
Member
| Joined: | Thu Jul 10th, 2008 |
| Location: | Denver Co. |
| Posts: | 5 |
| Status: |
Offline
|
|
Posted: Tue Jul 15th, 2008 02:46 pm |
|
| This is great info. the book 'BEATING CANCER WITH NUTRITION" i will rush and order it....even your driniing water matters...i was getting sick when n the hospitals and we were in a dizzy wondering whats going on...ny body can no longer tolerate water thats nof filtered and at home i boil my water and never use ice cubes when eating out..just have to bring my own ice cubes from my own boiled water..this has worked for me and kept me from getting any infections..so watch all that tap water and washing your vegs and fruits in it....wash everything ..keep passing on info....Thanks!
|
leann
Member
| Joined: | Fri Sep 5th, 2008 |
| Location: | |
| Posts: | 5 |
| Status: |
Offline
|
|
Posted: Fri Sep 5th, 2008 01:58 pm |
|
Hi sunshine,
I am also in my 7th year. have gone through 2 autos and one allo. Still not in remission. My mm is very aggressive and my dr is now looking into other treatments for me. I know that MSKCC in NY is a very good hospital, and they have centers in various states. Maybe there is an affiliate where you live or in Atlanta. Check it out.
|
sunshine
Member
| Joined: | Thu Jul 10th, 2008 |
| Location: | Denver Co. |
| Posts: | 5 |
| Status: |
Offline
|
|
Posted: Sat Sep 6th, 2008 08:25 pm |
|
| Thanks for the update and please keep in touch and keep me posted....WE NEED TO UPDATE EACH AND EVERYONE ON ALL NEW RESEARCH...we are in a fight that sometimes you have to FIGHT ALONE because you mayBE- the ONLY ONE in your community with MM..and info is not available like for Breast Cancer and etc.......I have to still search for info. and I DO APPRECIATE ALL -OF YOU -THAT HAVE COMPASSION-THAT SEND ME A CHAT......KEEP UP THE FIGHT...! sincerely, Sunshine
|
leann
Member
| Joined: | Fri Sep 5th, 2008 |
| Location: | |
| Posts: | 5 |
| Status: |
Offline
|
|
Posted: Mon Sep 8th, 2008 01:01 pm |
|
| Just found a website of a dr in atlanta (he also has offices in FL) that deals with natural cures. his website is abramswellnessclinic.com. you may want to check it out and tell me what you think. good luck.
|
jazzmom
Member
| Joined: | Wed Jul 9th, 2008 |
| Location: | |
| Posts: | 15 |
| Status: |
Offline
|
|
Posted: Tue Sep 9th, 2008 05:41 pm |
|
| I am curious about your experience on Dex/Thal if you took this combo before transplant. How were you feeling when you started the stem cell the first time? We are trying to get to the point of getting mom a stem cell treatment. she doesn't seem to react like most people on the DEX. she gets very sick on it, hurting everywhere and feels like she isn't in her own body anymore and severe depression. She fights to stay on it as they tell her any other treatment will not allow her to get a transplant. We worry she has an agressive type also as you mentioned? Thanks
|
leann
Member
| Joined: | Fri Sep 5th, 2008 |
| Location: | |
| Posts: | 5 |
| Status: |
Offline
|
|
Posted: Tue Sep 9th, 2008 06:36 pm |
|
| I was on the dex/thal. treatment. the thalidomide gave me some neuropathy in the feet, and the dex gave me a lot of energy and insomnia. I did suffer from some emotional instability (crying and irritable) while on the dex, but the thal helped me to sleep. so I took the dex (40 mg) in the morning and the thal at night (200mg). my first transplant was very tough. i vomited because of the chemo, lost appetite, and was very weak, but you start to feel better after about one week. my second was not so bad i withstood the treatment and was in remission longer than the first. if i can be of further help let me know.
|
sunshine
Member
| Joined: | Thu Jul 10th, 2008 |
| Location: | Denver Co. |
| Posts: | 5 |
| Status: |
Offline
|
|
Posted: Thu Sep 11th, 2008 02:41 pm |
|
| Thank u so much for the info about the Dr. in Atlanta and offices in Fl. I will pass this on and keep in my files for Others...I will keep u posted and hope to visit with this Dr. in the coming months....Hope u are doing well ..wishing u good health and spirit....STAY STRONG!
|
sunshine
Member
| Joined: | Thu Jul 10th, 2008 |
| Location: | Denver Co. |
| Posts: | 5 |
| Status: |
Offline
|
|
Posted: Thu Sep 11th, 2008 02:50 pm |
|
| still not in Remission after twe autos? you have been through a lot I admire your strength at least mine is not at the Agressive stage as of yet..but i have met with a few at our reunion last year in Denver that was at the same station as you...but came anyway to network...A cure maybe right around the corner or a new drug so we have to Be aware...will update u on anything new i find that can help..keep in touch....Peace! sunshine
|
Current time is 05:57 pm | |
|