| Author | Post |
|---|
Terry
Member
| Joined: | Tue Oct 27th, 2009 |
| Location: | |
| Posts: | 1 |
| Status: |
Offline
|
|
Posted: Tue Oct 27th, 2009 11:19 pm |
|
my husband (56)was diagnosed with stage III B MM in July 2007. He also has a plasmacytoma of the sphenoid sinus. He had radiation and chemo in the fall of 2007. In the beginning of 2008 we went to Moffitt Canacer center where in April of 2008 he had a bone marrow transplant. By August of 2008 he had to go back on chemo (revalmid) which has been off and on because of his platelets. They just did a bone marrow biopsy which shows he is not and did not ever go in remission and they recommend going back on chemo. He is losing weight, sick to his stomach, in a lot of pain. At this time would you recommend further treatment.
Terry
Last edited on Tue Oct 27th, 2009 11:40 pm by Terry
|
Chat Moderator
Administrator
|
Posted: Wed Oct 28th, 2009 12:52 am |
|
Hi Terry,
I am so sorry to hear about your husband. It would be against the law for us to recommend any type of treatment for your husband without first seeing him in our clinic and gathering a full medical history. We would be glad to help if your husband would like to see one of our myeloma specialists.
We set up this message board to answer general questions about myeloma and its characteristics, but we simply can not offer any treatment recommendations for specific patients via this board.
I wish you all the best, and please let us know if you would like to get an in-person treatment recommendation and we can arrange that for your husband.
Take care,
Chat Moderator
Huntsman Cancer Institute Myeloma Clinic
|
DougC
Member
| Joined: | Wed Dec 26th, 2007 |
| Location: | |
| Posts: | 108 |
| Status: |
Offline
|
|
Posted: Wed Oct 28th, 2009 12:57 am |
|
As a patient, I'm free to say what I want. Personally, I would seek more treatment. Ignoring the myeloma is not the answer. Does he still have stem cells frozen ready for use? One transplant may not have put him in complete remission, but did he have a positive response at all? Also, there are many combinations of drugs that can be used/tried. If you're not happy with the doc you're seeing, find a new one...a specialist. Loyalty to the doctor is great to a point. However, they're not worth dying for. If you can get to the Huntsman, I highly recommend it. I've seen some amazing results in myself and my fellow patients.
Bestest of luck
DougC
|
denesepete
Member
| Joined: | Wed Jun 17th, 2009 |
| Location: | |
| Posts: | 12 |
| Status: |
Offline
|
|
Posted: Fri Oct 30th, 2009 03:10 am |
|
Terry,
As Doug C said, amazing results!!! My husband is oe of Doug C's fellow patients. Two transplant, a really crappy year--absoultely worth it all. He's is in remission and feeling good--no pain. he is in maintenance chemo for a year and handling that very well so far Huntsman doctors are THE BEST as far as we are concerned. Get there if you can! At the very least get to a Myeloma specialist.
God bless,you are in our thoughts and prayers.
denese
|
Current time is 10:00 pm | |
|