HI, I'M NEW TO CHAT ROOMS, NEVER SEEMED TO HAVE MUCH TIME FOR THEM AND THAT MEANS THE SUPPORT GROUPS FOR MM ALSO. WELL TIMES ARE ACHANGING. I DEVELOPED MM IN 2005 BENCE JONES WHEN I WAS WITHIN TWO WEEKS OF THE TUMORS EATING INTO MY SPINAL CORD BAD ENOUGH TO PARALIZE ME. THE BACK SURGERY REPLACED A GOOD PORTION OF MY BACK AND NOW I AM VERY SLUMPED AND 2 AND A HALF INCHES SHORTER. FOR THE FIRST 6 MONTHS I WAS BEING TREATED WITH THALOMIDE AND STEROIDS. FOUR DOCTORS LATER AND ALMOST DEAD, I FOUND DR. BERRYMAN AT BAYLOR IN DALLAS TX. MY NUMBER WENT FROM 283 TO 5 WITHIN ONE MONTH AND I HAD A TRANSPLANT THE SECOND MONTH. I HAVE HAD A GREAT LAST YEAR, BUT MY NUMBERS ARE JUMPING AGAIN. I AM SCHEDULED FOR RESTAGING WITH PET AND BONE MARROW BIOPSY. I AM INTERESTED IN HEARING FROM SOMEONE WHO HAS HAD A SECOND OR THIRD TRANSPLANT. I WAS TOLD THIS ONE WOULD BE VERY AGRESSIVE. I AM STARTING TO FEEL LIKE I WAS HIT BY A TON OF BRICKS AGAIN QUICKLY. VERY SLEEPLY AND NAUSEOUS. MY NUMBERS LAST MONTH WAS 10.8 BUT THIS MONTH IT IS 24. IS THIS A BIG JUMP. I AM A 58 YEAR OLD FEMALE VERY ACTIVE UNTIL THIS. WHAT CAN I EXPECT THIS TIME?
The staff of the Myeloma Program at Huntsman Cancer Institute is happy to offer you any support we can to help you cope with all that you have been through with your disease.
Our director, Dr. Guido Tricot, will send you a personal message with his comments and feedback on your situation and some of his recommendations for treatment. You can expect to receive the message within the next few days.
